9 Questions About Celiac Disease, Answered, as Featured in USA Today | Celiac Disease Foundation (2024)

5/20/2016

PREVENTION & TREATMENTWhether you’re asking for yourself, a loved one or for a friend, here are the answers to the most common questions that come up after a diagnosis of gluten sensitivity.

1. Does gluten make you fat?

No. Gluten does not make us fat; lifestyle choices do. It is consuming more calories than we expend that makes us fat—not whether or not we eat gluten.

2. Will I lose weight on the gluten-free diet?

Not necessarily. Most people with celiac disease who adopt a strict gluten-free diet actually gain weight when their intestinal tract begins to heal, since they can absorb nutrients again. For them, the combination of better absorption and eating higher calorie gluten-free substitutes for bread, pasta, pizza, baked goods, among others, tends to result in weight gain.

A naturally gluten-free diet (i.e., lean meats, poultry, fish, nuts, veggies, fruits) is optimal for weight management, and will not contribute to weight gain if high calorie gluten-free substitutes are avoided.

3. Are people with celiac disease always skinny?

No. Forty percent of people diagnosed with celiac disease are overweight at their time of diagnosis. Only 4 to 5 percent are underweight.

4. What is 20 parts per million (ppm) of gluten, and how much gluten-free food can I eat without getting sick?

Twenty ppm of gluten is the amount of gluten the FDA allows in a product labeled “gluten-free.” According to the latest research, ingesting 50 mg of gluten per day causes intestinal damage for people with celiac disease. That means you must eat at least five pounds of gluten-free food (with <20 ppm of gluten) per day for damage to occur.

5. Is my child’s school required to provide him a gluten-free lunch?

Yes. In compliance with the Americans with Disabilities Act (ADA), schools are required to provide students with celiac disease and other food allergies safe and nutritious food options. However, they are not required to provide meals equivalent to those served to other students. For children with a 504 Plan (those with a documented disability), the school must provide lunch in addition to a classroom management plan.

6. Is it safe to work in a bakery if I’m not eating anything?

Breathing in gluten is similar to ingesting it. Although the flour cannot be absorbed through the skin, it can be “breathed in.” Working in a bakery, unless it is a gluten-free bakery, is not an ideal job for those with celiac disease.

7. Do I have to give up coffee and corn on a gluten-free diet?

No, coffee and corn are both gluten-free. There is no scientific evidence to show that coffee or corn contain proteins that cross-react with gluten. According to Dr. Stefano Guandalini, a CDF Medical Advisory Board member, both are safe for people with celiac disease to consume.

8. Will glutenase and other “gluten-cutter” products help those with celiac disease digest gluten?

No. There is no scientific evidence that products that contain the digestive enzyme DPP-IV, such as glutenase, help digest gluten.

9. Do I have to use special gluten-free soaps, shampoos and lotions if I have celiac disease? Can gluten be absorbed through the skin?

No. Gluten cannot be absorbed through your scalp or skin. It must be ingested to affect those with Celiac disease. Lipstick and lip products should be gluten-free as they are easily ingested. However, patients with active dermatitis herpetiformis, a skin condition of celiac disease, should use gluten-free products to avoid contact with any open skin lesions.

MARILYN G. GELLER, CHIEF EXECUTIVE OFFICER, CELIAC DISEASE FOUNDATION, [emailprotected]

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9 Questions About Celiac Disease, Answered, as Featured in USA Today | Celiac Disease Foundation (2024)

FAQs

9 Questions About Celiac Disease, Answered, as Featured in USA Today | Celiac Disease Foundation? ›

About Celiac Disease Foundation

Celiac disease is a chronic, hereditary, intestinal malabsorption disorder caused by intolerance to gluten.

What is celiac disease celiac disease foundation? ›

About Celiac Disease Foundation

Celiac disease is a chronic, hereditary, intestinal malabsorption disorder caused by intolerance to gluten.

How many people have celiac disease in the United States? ›

Many people who have celiac disease have not been diagnosed. However, experts estimate about 2 million people in the United States have celiac disease and about 1 percent of people around the world have celiac disease.

What is the good news about celiac disease? ›

New results from clinical trial shows continued progress for a drug to treat celiac disease. Increased doses of a drug being studied for the treatment of celiac disease tempered the response to gluten in celiac disease patients and remained as safe and well tolerated as lower doses.

What is the biggest damage of celiac disease? ›

Long-Term Health Effects

People with celiac disease have a 2x greater risk of developing coronary artery disease, and a 4x greater risk of developing small bowel cancers.

How does celiac affect the body? ›

If you have celiac disease, eating gluten triggers an immune response to the gluten protein in your small intestine. Over time, this reaction damages your small intestine's lining and prevents it from absorbing nutrients, a condition called malabsorption.

How long can you have celiac disease without knowing? ›

There is an average delay of 6-10 years for an accurate celiac disease diagnosis. Without a timely diagnosis, celiac disease can lead to intestinal cancers, type 1 diabetes, osteoporosis, thyroid disease, multiple sclerosis, anemia, infertility and miscarriage, epilepsy, and more.

Does celiac get worse over time? ›

Over time, a range of problems may develop as a result of the body's reaction to gluten — from skin rashes and lactose intolerance to infertility, bone weakness and nerve damage. These can often happen even in the absence of digestive symptoms.

What race is most affected by celiac disease? ›

Race. Celiac disease usually affects individuals of the non-Hispanic white race (1000 per 100,000 individuals), Hispanics (300 per 100,000 individuals) and non-Hispanic blacks (200 per 100,000 individuals). HLA-DQ2 associated celiac disease is frequently found in white populations located in Western Europe.

Why is celiac disease so serious? ›

Chronic inflammation leads to an increased risk of cancer in your small intestine. Studies show about 7% of people with celiac disease develop intestinal lymphomas, usually after several decades. There's also a slightly increased risk of intestinal adenocarcinoma and esophageal cancers.

Does celiac disease affect lifespan? ›

Celiac disease is not a fatal condition. But if it's not managed, it can affect your health In ways that put you at risk of earlier death.

How does celiac disease change your life? ›

People with CD may experience joint pain, osteopenia or osteoporosis, bone fracture, rash, and psychiatric symptoms such as anxiety and depression. The environmental trigger for CD — gluten — is known.

Why is it called celiac disease? ›

Aretaeus used the word, “coeliac,” derived from the Greek, “koiliakos” (meaning “abdominal”) to detail a case record of celiac disease including symptoms of diarrhea and malabsorption.

Does celiac get worse with age? ›

The risk of autoimmune disorders and cancers particularly increase in older celiac patients and is shown to be associated with both the age and the duration of gluten exposure.

How rare is celiac disease? ›

Myth 1: Celiac disease is a rare condition.

Celiac disease is actually common and thought to affect one in 100 people worldwide, which makes it more prevalent than peanut allergy. However, many individuals with celiac disease remain undiagnosed.

Are you born with celiac disease? ›

None of us is born with celiac disease. It can develop at any age, from infancy to late in life. Some people have no trouble with gluten for many years and then suddenly develop this immune reaction to it.

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